ALS Resources

Tools and Information

Living with ALS  Manuals (als.org) 

These cornerstone educational materials designed to inform and educate people about ALS in a comprehensive and easily understood format. They address many of the common concerns and issues that face people living with ALS.

ALS Guardian Angels 

ALS Guardian Angels grants help families with expenses not covered by Medicare, Medicaid, insurance and other reimbursement programs. Recipients may apply for and receive grants up to $1,500 each. Grant approval will be based on need and available funds.

ALS Needslist

Review  needs posted by people with ALS & their caregivers.  Reply to the need as you would a classified ad or craigslist posting.  We will connect you with this person so that you can help.

Advance Care Planning and ALS

Advance Care Planning and the ALS Patients: A Cross-Cultural Perspective on Advance Directives

Nursing Management of ALS

Care planning provided by the ALS Association

ALS from Both Sides

The focus of this site is dealing with some of the medical complications of ALS from the perspective of a health professional who has had ALS for over 24 years.   All too often these things are inadequately addressed because the expectation is that we will not be around long enough to worry about “long term” problems. These are problems that can and must be minimized in order to assure a good quality of life even if that life is short. This is increasingly important because several factors are likely to extend the life of ALS patients in years to come

ALS Care 

ALS has an erratic and progressive nature, so finding answers to your daily issues can be a great challenge. You have landed in the right place.  ALS Care will support you with the ability to meet and handle your diagnosis. Finding the equipment, devices, web sites, physicians, articles . . .

Local Organizations

ALS Center| UCSF Medical Center

The UCSF ALS Center provides specialists in the treatment of amyotrophic lateral sclerosis (ALS), commonly known as Lou Gehrig’s disease, a progressive degeneration of nerve cells that control muscle movements. The center has a team including neurologists, pumonologists, gastroenterologists, nurses, social works, a dietitian and genetic counselor to help identify your treatment needs and control your symptoms.

ALS Center
400 Parnassus Ave., Eighth Floor
San Francisco, CA 94143
Phone: (415) 353-2122

Forbes Norris MDA/ALS Research & Treatment Center at CPMC

Located at 2324 Sacramento Street in San Francisco, it is the largest ALS clinical research center in the United States and is one of six national Muscular Dystrophy Association ALS Centers dedicated to ALS treatment and muscular dystrophy treatment.

ALS Association – Golden West Chapter

The ALS Association Golden West Chapter provides:

  • High-quality multidisciplinary care through Chapter-supported multidisciplinary ALS Centers and Clinics in your area, Care Managers, and Support Group facilitators that you depend on.
  • Resources and information about ALS and services with two Chapter offices – one in the Bay Area and one in the Los Angeles Area- with dedicated staff that you rely on for information and support.
  • Leadership in research, fundraising, public awareness, and ALS advocacy throughout the state, with our one voice heard over a wider area, and each donation having a greater impact.

National Organizations

ALS Association 

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.

Mayo Clinic 

Mayo Clinic provides information about ALS and has clinics nationally to assist with diagnosis and treatment.

 

“Today, I consider myself the luckiest man on the face of the earth.”, Lou Gehrig’s Retirement Speech from Baseball –  Tuesday, July 4th, 1939

Testimonials

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