These cornerstone educational materials designed to inform and educate people about ALS in a comprehensive and easily understood format. They address many of the common concerns and issues that face people living with ALS.
ALS Guardian Angels grants help families with expenses not covered by Medicare, Medicaid, insurance and other reimbursement programs. Recipients may apply for and receive grants up to $1,500 each. Grant approval will be based on need and available funds.
Review needs posted by people with ALS & their caregivers. Reply to the need as you would a classified ad or craigslist posting. We will connect you with this person so that you can help.
Advance Care Planning and the ALS Patients: A Cross-Cultural Perspective on Advance Directives
Care planning provided by the ALS Association
The focus of this site is dealing with some of the medical complications of ALS from the perspective of a health professional who has had ALS for over 24 years. All too often these things are inadequately addressed because the expectation is that we will not be around long enough to worry about “long term” problems. These are problems that can and must be minimized in order to assure a good quality of life even if that life is short. This is increasingly important because several factors are likely to extend the life of ALS patients in years to come
ALS has an erratic and progressive nature, so finding answers to your daily issues can be a great challenge. You have landed in the right place. ALS Care will support you with the ability to meet and handle your diagnosis. Finding the equipment, devices, web sites, physicians, articles . . .
The UCSF ALS Center provides specialists in the treatment of amyotrophic lateral sclerosis (ALS), commonly known as Lou Gehrig’s disease, a progressive degeneration of nerve cells that control muscle movements. The center has a team including neurologists, pumonologists, gastroenterologists, nurses, social works, a dietitian and genetic counselor to help identify your treatment needs and control your symptoms.
400 Parnassus Ave., Eighth Floor
San Francisco, CA 94143
Phone: (415) 353-2122
Located at 2324 Sacramento Street in San Francisco, it is the largest ALS clinical research center in the United States and is one of six national Muscular Dystrophy Association ALS Centers dedicated to ALS treatment and muscular dystrophy treatment.
The ALS Association Golden West Chapter provides:
Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.
Mayo Clinic provides information about ALS and has clinics nationally to assist with diagnosis and treatment.
Your team of geriatric care managers and healthcare advocates helped me respect my mother in law’s wishes to stay home. I don’t know how we would have done it without you. You were consistently there with helpful suggestions, for doctor visits, and, yes, even for emergencies. You were caring and gentle yet forceful when things needed to be done. We are all grateful for how you worked with her and for your wonderful, and much needed, family support.